Happy 25 weeks sweet boy!
This week has been nothing but busy for you! You have been busy kicking at all hours, busy growing, and busy soaking in lots of snuggles. We have been having so much fun talking to you and telling you all about our adventures and telling you about how busy you have been keeping us! You just roll and squirm when you hear our voices, it's the best. We've also been giving you the pleasure of hearing our 'wonderful singing voices'. ;) Mama sings "You are my Sunshine" and you get so calm and quiet. Its beautiful. Well, it's beautiful at how calm you get, we can't say the same for Mama's singing voice. Mama can't wait to hold you in her arms and sing it to you.
We finally got the special chance to ask Uncle Jason if he would be your Godfather! Of course he said yes and him a Daddy celebrated with a very Godfatherly cigar.
Every night, before bed, we have some snuggle time on the couch. Big Brother talks to you and loves feeling you move around. This week he laid really close to see if he could hear you talking back. :)
We got your shirts in from the amazing team at Shirt Kong!!!! (Have we mentioned how much we love them?!!!) Your very first fundraiser is complete and it was such a HUGE success. We are in the process of getting a lawyer and drawing up papers for a trust for your foundation and paying for the ultrasound scan that we had of your brain. This fundraiser is helping to pay for those two things. The remainder of the funds is being put towards our Duke University donation, and being saved for your future medical expenses and foundation work. We are so grateful to everyone who contributed to Luca's Bright Light Fundraiser. Thank you for helping us to do so much more for our son and for all babies that are diagnosed with Acrania and Anencephaly. However, Thank you will never be enough and truly doesn't justify how much your generosity means to us.
Mama and Papa have been super busy sorting shirts and getting them delivered and mailed.
We loved getting a few pictures in of Team Luca supporters in their shirts and we cant wait to see more Luca adventures in the coming weeks.
Thank you Jordan Lawrence!
And thank you Backes for looking stunning...as always.
On Thursday our friend Laurel told us about the upcoming season premiere of KSDK's Frontline for Hope, a show that chronicles the stories of the brave children at Saint Louis Children's Hospital. In the season premiere preview a sweet baby girl named Aliyah is born without the top of her skull and diagnosed with Acrania, the same diagnosis that you were recently given.Through our research we know two things, she defeated her death sentence and she is a moving and grooving sweet little girl. To say we are overflowing with hope is an understatement. We are so excited to see her story unfold, learn about their research and developments, and get in contact with the doctors that are working on treating these babies right in our own backyard, here, in Saint Louis.
Everyone came over to watch the show with us! We contacted Children's again and officially have an appointment set up with them next week. We have been praying like CRAZY that their team will be more optimistic and get us the answers we need and that every family facing these diagnoses deserves.
We love you baby boy...to the moon and back, forever and ever. -Mama and Daddy
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