Wednesday, November 19, 2014

Luca is 6 months!


Can you believe it baby bear?! You are 6 months old. Oye, how time flies. Mommy and Daddy would give ANYTHING to slow down this time with you. Its going way too quickly. 

This week we fulfilled the number one thing Papa wanted to do with you...take you ice skating. Hockey is a huge part of our family, in fact it's how Mommy and Daddy met, and being able to ice skate with his boys was something Daddy was determined to do. 


After your loop around, we of course had to take a photo opt with everyone who was there skating with you. Thank you Grandpa Greg and Uncle Jacob for having so much fun with us. <3




And an extra special shout out to Grandpa Greg for helping Mama tie her skates! You (Luca) were so excited and stretching out all over Mama's tummy, that Mama couldn't bend to do it herself. Thanks Grandpa, it was just like the good ol'days. 


Daddy and his boys ice skating for the very first time. <3

On Sunday we went to Build a Bear with Big Brother, GodMama, and her sweet little munchkins. Big Brother had oodles of fun and you were just as thrilled as you wiggled and kicked the entire time! Big Brother made you your own special Luca Bear that you can snuggle with at the hospital when you are born. He can't wait to give it to you! He's keeping it safe by his bed till February. No worries.

First, Big Brother picked out your bears heart and warmed it up! Then, he added all the kind qualities he thought your sweet little bear should have.


Next, he worked very hard on stuffing your bear with lots of soft squishy love. 

 


Yup, that feels squishy enough!

 Your bear is all finished! Well, almost. We got a special recorder while we were there to record your heartbeat at our next sonogram. The recorder fits perfectly inside your bear so that we can always hear that precious heartbeat of yours.
 Big Brother and Mama made an official bear birth certificate for Luca Bear the bear. 
He's all yours!

A visit with Grandma Melinda and Uncle Devin! :)


It snowed! It's so hard to see it in this picture but it snowed for the very first time on Thursday (November 13th). You kicked and punched all around! You were so happy...or scared because of all the little screams of excitement that you may have been hearing in Ms.Melanie's classroom. It was so pretty!

Later that day Papa came and visited us at school for Thanksgiving lunch. It was soooo good! You had 2 plates, plus your new favorite dessert....pumpkin pie! And then you may or may not have had another slice after that one. We'll let Mama's thighs do the talking in a few months. 


Our buddy Greg took you to the King of Kings statue or "Touchdown Jesus" at Notre Dame. Awesomeness!
Thank you Greg!

On Friday we got the results back from your chromosome test. We had been told that you likely have other chromosome abnormalities along with your Acrania and Anencephaly. The doctors suggested doing the chromosome test to have us clearly see what other life threatening obstacles you were facing and why your survival just wasn't possible. However, the test came back that you are at NO RISK for any other chromosome abnormalities. You are our perfect little fighter. 
So what does this mean for you and for us now? Well, we hope that it will give the doctors a green light for ordering the fetal MRI. We hope it will give them the curiosity to see what the real issues are with Ancephalic babies and why they can't be saved, and someday on how they can.  We are tired of hearing guesses and hope someone will start wanting to learn more about the facts. We hope one of them will want to fight right along with us.
Not all Ancephalic babies have Chromosome Abnormalities, so our guess is that not all Ancephalic babies have to die. 

Keep fighting baby boy, we are all right here fighting with you. 

Happy 24 weeks of life sweet boy.
We love you SO MUCH, to the moon and back. -Mommy and Daddy


No comments:

Post a Comment